Click “Register here” at the bottom of this page to access the registration form.
After registering, a study coordinator will contact you via email with more information about the Registry, including the study protocol. You will also receive a Data Sharing Agreement (DSA) to review and sign. Please check your spam/junk folder in case the email is filtered there.
Once you’ve reviewed and returned the signed DSA to gbcregistry.heel@radboudumc.nl, you will receive a separate email with your Castor login details. You can then begin entering your data!
Practical information
Anyone who’s interested in joining is eligible. There is no minimum number of cases needed to contribute to the study.
Cases can be entered both retro- and prospectively. All adult patients diagnosed with gallbladder cancer from 2016 onwards can be included.
The database is hosted by CastorEDC, an online, secure, data-management tool which is easy to access and use.
Entering a case can take up to 15 minutes per case, depending on the extent of the treatment the patient receives.
All collaborators will be acknowledged on any manuscript published by the consortium.
Since data-entry may be time-consuming, each center is allowed to add a resident, fellow or data-manager to the study team to aid with data entry. They’ll be mentioned along the local primary investigator on any publications.
All collaborators retain access to their own data for personal use. Additionally, research proposals can be submitted to the study coordinators to request access to the full database. Upon approval, full access may be granted to support your own research questions.
Fill in the register form by pressing “Register here” on the bottom of this page.
Within three working days, the coordinator will get back to you with an e-mail containing additional, logistical instructions. If you don’t hear back from our coordinator within the specified timeframe, your e-mail may not have gotten through our spam filters. You can contact Elise de Savornin Lohman (postdoctoral researcher and co-investigator) at elisedesavorninlohman@gmail.com . She’ll forward your e-mail to the daily coordinator.
Ethical approval has been obtained by the Radboudumc in the Netherlands. Depending on local practice and legislation, you may need to file for ethical approval in your own institute. The study coordinator can aid you with the required documentation.
The study coordinator will share our standardized data sharing agreement with you to ensure safe and fair data transfer for all parties involved.
After you’ve expressed your interest, and have sent a signed DSA form, you’ll be invited to our CastorEDC database. This will be done by our study coordinator. you’ll receive a separate email with login details. If you’d like me to add anyone else for the purpose of data entry, please share their name and email address with the study coordinator.
Save the date: Annual IHPBA GBC Registry Meeting 9th of December 2025
We value all our collaborators and their input. Therefore, we organize annual IHPBA GBC Registry Meetings to come together, reflect on the past year’s progress, and discuss future research goals. This year’s meeting will be held digitally on December 9th, 2025, from 15:00 to 16:00 Amsterdam time (CET). The final agenda and access details will follow soon.
We warmly encourage you to participate and contribute your ideas. Please let us know your attendance and share any suggestions for topics or discussion points by completing
Gallbladder cancer registry 